Summer is well and truly upon us, and it brings more than just record-breaking heatwaves! We've published a bumper quarterly magazine for our members. Read on to find out what's inside - and why we've got a different logo on Facebook and Twitter this month!
Our packed Summer magazine includes:
Events Calendar and details of our upcoming activities
Feature about our 20th anniversary Arts Exhibition (watch this space!)
News from the charity, and letters from the editor Becca and new staff member Pippa
Listen to ME - a new Action for ME support line
'Rethinking ME' - the new report from the All-Party Parliamentary for ME/CFS
Details about our SpeakUp project with Healthwatch Sheffield
POTS - our talk with Sanjay Gupta
GP best practice for ME
Features on 'Walking with Alpacas' and 'Lens on Photography' from members
Recipe - Summer Broad Bean Salad
Poetry, photography and crafts from our members
Sudoku and Colouring
We publish our Magazines every quarter, and send them out by post and email to members. If you're interested in receiving this - along with all the other benefits of membership - you can sign up here for just £12 per year:
If you're already a member and haven't received your magazine yet, please contact info@sheffieldmegroup.co.uk for support.
Disability Pride Month logo
Last month we debuted our LGBT+ Pride logo on social media, to show our support, solidarity, allyship and welcoming of everyone who identifies under the banner. While the logo was only up during Pride month, the ethos remains true for us all year long.
This month we have a new logo, to celebrate Disability Pride Month!
History
July was chosen as Disability Pride month after US President George H.W. Bush signed the Americans with Disabilities Act (ADA) into law on July 26, 1990. The first Disability Pride parade was held in Boston, Massachusetts that same year. In the UK, a Disability Pride event has been held in Brighton every year since 2017, though it moved online during the Covid pandemic. You can find out more here and here.
Flag
The flag we have incorporated into our logo was designed in 2021 by disabled artist Ann Magill, and is the second version of the flag that she first designed in 2019. The original design featured bold bright colours and a jagged zig-zag stripe, but it was noted that this design wasn't accessible to some disabled people, so it has since been redesigned with muted colours and a straight stripe:
All aspects of the design carry meaning:
Charcoal background - mourning for all those who’ve suffered abuse and violence, because of ableism
Striped band - the barriers that disabled people have to cross every day, and and the ingenuity they illustrate when navigating those barriers
Red stripe - physical disabilities
Gold stripe - cognitive and intellectual disabilities, and neurodiversities
Light grey stripe - invisible and undiagnosed disabilities
Blue stripe - mental illness
Green stripe - sensory perception disabilities
Our pride
Under the UK Equality Act 2010, you’re considered disabled "if you have a physical or mental impairment that has a ‘substantial’ and ‘long-term’ negative effect on your ability to do normal daily activities". That means for many people with ME/CFS, Fibromyalgia and Long Covid, their conditions are disabling.
The term 'disabled' can carry a lot of weight and historical stigma in our society, and as a result many don't feel comfortable applying the word to themselves. That's okay, and there's no obligation to do so if it doesn't feel right for you. But equally, many find it empowering to use the term as a form of ownership over their life experiences,
At Sheffield ME and Fibromyalgia Group, our priority is to support people in the area living with these conditions and Long Covid, and also to raise awareness about the impact they have on peoples' lives. As part of that, we recognise and want to raise awareness that these illnesses can be disabling. We don't think society, press or healthcare should shame people for the impact it has on their lives. We don't think people should feel pressured ho hide the impact of these conditions. And we want to continue fighting so that all those affected get the belief, support, research and treatment we deserve. That's why we are proud to celebrate Disability Pride Month!